Consent Support Tool

Rebecca Palmer & Mark Jayes

ISBN13: 978-1-907826-46-7

Release Date: Spring 2020

NOW REISSUED WITH J&R PRESS

Communication disorders may be associated with acquired health conditions, including stroke, brain injury, Parkinson's disease and dementia, and lifelong conditions such as learning disability and cerebral palsy. People with communication disorders have often been excluded from health research studies, perhaps because the process of gaining informed consent from this population is considered to be challenging. This is unethical and limits the generalizability of research findings.

The Consent Support Tool has been developed specifically to facilitate involvement of people with communication disorders in health research studies, and to help health research professionals obtain informed consent from this population. It offers researchers an easy-to-use, practical, clinically evaluated tool which has been designed to help identify individual communication needs, and recommend strategies for providing accessible information about a research study, and for supporting participation within the study.

WHAT THEY ARE SAYING ABOUT THIS BOOK:

The Consent Support Tool is easy to use and has the additional value of guiding us on how best to present information to someone with aphasia. It has helped the researchers feel more confident in gaining consent from people with aphasia...

Dr Shirley Thomas, Lecturer in Rehabilitation Psychology, University of Nottingham

Research involving people with aphasia is so important. As a carer with all the frustrations and impatience that this entails, I think it is important that a patient with aphasia can take part in research...

Ian Merriman (carer for his wife with aphasia)

The Manual is accompanied by 15 4-page forms to use with clients, and comes in a sturdy plastic box.

Also available - A pack of 15 forms - Code J048